So I was suppose to head out on the 4 1/2 hr drive back home for my birthday this weekend...and the plan was to go in the middle of the night after work.. but i was a bit too tired, so i showered and took some of my special help me stay awake meds (adderall from my sleep doc guy) and.....well, i packed.. but i got massively side tracked reading stuff about EDS.. wandered across a facebook EDS page, and its awesome! the photos make me want to get someone to take my pic doing the ones I can do, before my joints all get arthritis and things hurt too bad..lol dont have any documentation of any of me and moms weird stuff..Lol And the "You might have EDS if...." on the discussion board is absolutely priceless! =)
made a cd for the road.. im hungry but NOTHING sounds good..
MUST. DRIVE!
gah.. and now im dumb so im probably gunna hit traffic.. dangit.
And as much as i wanna power through the drive, i know i'll need to stop a few times so I dont end up with SI-related-muscle spasms, which would totally put a damper on my birthday weekend...
Im bummed that i procrastinated so much cuz now i wont getta spend as much time with my best friend tonight, cuz when i get into town, I'll be meeting mom and going out to eat with her.. have some stuff to catch up on, and an emotional topic i think im finally ready to talk about.
My joints hurt... unfortunately i think my reading about other peoples stuff, and various questions/MD concerns etc... it makes me a bit more aware of things. And... i did some of the stuff i saw in pictures, "to see if i could do it" - and i think things are a bit achy because of that too... wooops...
Have my apt with the Ortho guy on Wed morning...(which got me on the whole, EDS-info-topic, makes me wonder if i should print something out for him? Ive never seen a specialist for an EDS-related-deal really before so... (my primary has always just sent me to PT in the past) and i dont wanna get dismissed or something... hmm.. . suggestions?
K.. off i go! I'll be 26 on Sunday. yay! Should be a fun weekend, minus the drive. lol =) Then... drive back monday morning, and work 3 days, one off, then 2 more... eep!
Friday, August 20, 2010
Wednesday, August 18, 2010
Yup, still falling apart.
I finally went to the doctor about my hips and shoulder... i probably was suppose to lose my insurance by now, but i'm sorta delaying the notification of change of income process...... Should have tried to go sooner thats for sure. She did a bit more than I thought she would.
Went in for some labs recently and got a call about needing to take more Vit D and iron supplements (damnit, i thought i was past this anemia thing... its been 4 years since ive had to take them, but my H&H arnt very happy, 10.9 and 32.5....woops!). Vit D is better, but not good enough yet. (least its not 14 anymore...lol). so...getta keep taking that too.. but everything else looks good, and my cholesterol looks really good, so yay!
So when i was on the phone with the lady, i decided to see if they had any apts in the near future...and i got one the next day! sweet!
So i saw her (i really my doc) and keeping in mind she hasnt really ever seen me for a joint problem before except my arthrtic hand. - So i decided to just show her what my shoulder does (its always slid forward, so i just pushed it back into place lol
She did a few more pokes and prods to my shoulder, and to my hips and lower back.. SI joint is a bit tender too apparently but it doesnt actively hurt right now. yay.
She was pretty fascinated with my super lax shoulder, and seemed abit surprised its staying in the socket at all. lol And said I have "Severe bursitis" in my hip. Did some hip x-rays. And referred me to an Ortho doc. Ive never actually seen one before for my EDS stuff, so that should be interesting. IF i can get an apt before my insurance goes away...
She is hoping for a cortisone injection for me in the hip, to help tide me over till i have insurance again and can do something a bit more long term perhaps. Which I'd have to schedule the shot when i'm not working for a few days...cuz im assuming I'll get the lovely "Cortisone Flare" like i got in my foot.... where it gets waayyyy worse for 3 days b4 it gets better... which will, um.. suck but least i only have one step where i live right now... lol
(I knew there was a reason i refused to let my crutches go into storage...i put them in my trunk just in case lol Course crutches should be fun this time with my shoulder bein how it is, and the arthritis in my hand Lol)
And she wrote a script for PT for hip and shoulder, but we dont think i have coverage for that...but worth a shot maybe. And she gave me a brochure thingy for rotator cuff injuries in prep for surgery, but it has some basic PT exercises I can do to help strengthen it a bit perhaps.
And my doc said something about how I should be a contortionist lol.. =) We joke around a bit heh. We also ended up havin a decent serious convo about me and nursing.. And she agreed with me about my "plan" to do floor nursing for as long as i physically can, and then I'll switch to a less physical nursing job.. theres a lot out there. Thats whats so great about nursing.
I did a bit of show and tell, cuz while she knew i had EDS, its never really come up before. She seemed rather surprised im as 'put together" as i am and that things dont actually pop out of place completely, based on how lax it all is.
I knew that damn Transporter gig was too much for me. Aw well. It got me through things financially, and it was fun in a way, when I wasnt in lots of pain. Lol And i did lose another 10lbs that month..Lol
I'm down 30lbs since christmas... I haven't weighed what i do now, since I was in 4th or 5th grade. Weird.. Am 167lbs according to the docs scale. Need this bursitis thing to calm down, so i can handle curves some more... I miss it. Might be able to do a modified version...? hmm.. we'll see.
k.. i gotta goto sleep. im so dang tired.. and oh man how i miss my super soft bed!! House im staying at? eh...bed is *okay* only because i brought my memory foam mattress pad.. but its not nearly as soft as i need it. Aw well, can't win em all.
ouch.. i think im doing the aleve deal, most of my bruises are gone,but i gotta get thru the next couple of days and it hurts dangit. Advil isnt cutting it.
goodnight!
Went in for some labs recently and got a call about needing to take more Vit D and iron supplements (damnit, i thought i was past this anemia thing... its been 4 years since ive had to take them, but my H&H arnt very happy, 10.9 and 32.5....woops!). Vit D is better, but not good enough yet. (least its not 14 anymore...lol). so...getta keep taking that too.. but everything else looks good, and my cholesterol looks really good, so yay!
So when i was on the phone with the lady, i decided to see if they had any apts in the near future...and i got one the next day! sweet!
So i saw her (i really my doc) and keeping in mind she hasnt really ever seen me for a joint problem before except my arthrtic hand. - So i decided to just show her what my shoulder does (its always slid forward, so i just pushed it back into place lol
She did a few more pokes and prods to my shoulder, and to my hips and lower back.. SI joint is a bit tender too apparently but it doesnt actively hurt right now. yay.
She was pretty fascinated with my super lax shoulder, and seemed abit surprised its staying in the socket at all. lol And said I have "Severe bursitis" in my hip. Did some hip x-rays. And referred me to an Ortho doc. Ive never actually seen one before for my EDS stuff, so that should be interesting. IF i can get an apt before my insurance goes away...
She is hoping for a cortisone injection for me in the hip, to help tide me over till i have insurance again and can do something a bit more long term perhaps. Which I'd have to schedule the shot when i'm not working for a few days...cuz im assuming I'll get the lovely "Cortisone Flare" like i got in my foot.... where it gets waayyyy worse for 3 days b4 it gets better... which will, um.. suck but least i only have one step where i live right now... lol
(I knew there was a reason i refused to let my crutches go into storage...i put them in my trunk just in case lol Course crutches should be fun this time with my shoulder bein how it is, and the arthritis in my hand Lol)
And she wrote a script for PT for hip and shoulder, but we dont think i have coverage for that...but worth a shot maybe. And she gave me a brochure thingy for rotator cuff injuries in prep for surgery, but it has some basic PT exercises I can do to help strengthen it a bit perhaps.
And my doc said something about how I should be a contortionist lol.. =) We joke around a bit heh. We also ended up havin a decent serious convo about me and nursing.. And she agreed with me about my "plan" to do floor nursing for as long as i physically can, and then I'll switch to a less physical nursing job.. theres a lot out there. Thats whats so great about nursing.
I did a bit of show and tell, cuz while she knew i had EDS, its never really come up before. She seemed rather surprised im as 'put together" as i am and that things dont actually pop out of place completely, based on how lax it all is.
I knew that damn Transporter gig was too much for me. Aw well. It got me through things financially, and it was fun in a way, when I wasnt in lots of pain. Lol And i did lose another 10lbs that month..Lol
I'm down 30lbs since christmas... I haven't weighed what i do now, since I was in 4th or 5th grade. Weird.. Am 167lbs according to the docs scale. Need this bursitis thing to calm down, so i can handle curves some more... I miss it. Might be able to do a modified version...? hmm.. we'll see.
k.. i gotta goto sleep. im so dang tired.. and oh man how i miss my super soft bed!! House im staying at? eh...bed is *okay* only because i brought my memory foam mattress pad.. but its not nearly as soft as i need it. Aw well, can't win em all.
ouch.. i think im doing the aleve deal, most of my bruises are gone,but i gotta get thru the next couple of days and it hurts dangit. Advil isnt cutting it.
goodnight!
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